Share Your Story

How has epilepsy effected you? Know that you are not alone, read stories from other people who have gone through much the same as you. Whether it be someone with epilepsy, the parent of a child with epilepsy, the child with a parent who has epilepsy, a friend, loved one – you are not alone in this.

We invite you to read the stories of others below. Have a story you’d like to share? Please email


Dare to Say SUDEP: Johnathan’s Story

Today in honor of SUDEP (sudden unexpected death in epilepsy) Awareness Day we share the story of Johnathan as written by his mother, Jerri. Johnathan's story is not to increase fear, but to raise awareness for SUDEP. Join us in raising awareness so SUDEP gets the research attention it deserves; as we continue to work towards our goal of not another life lost to epilepsy. [...]

Chris C.

So imagine, in one ten-minute stretch, hearing that you’ve got a life-changing illness, your car is being taken away, and by the way we’re putting you on medicine that may completely change your personality. Great! Once you’re grown, finding out you yourself are the #1in26—“adult onset” is the term--is not only wildly unexpected, it does indeed stink. To high heaven. My story: suffered a seizure [...]


My Journey of Epilepsy July 2006, age 33, I woke up after having multiple sensations of what I had been describing as “heated nausea” for several months. I kept thinking I must have acid reflux. I had recently divorced from my husband, and my 3 year old daughter and I were living with my parents. My first grand mal seizure came one morning when I [...]


When Noel came into the world on July 1, 2004, all was normal; all was perfect. Our second child, our first girl, came into the world three weeks earlier than expected, but that's her personality -- ALWAYS ahead of everyone. It falls into every part of her being, she's even two years ahead in school. Fast-forward almost eight years to the day, the day our [...]


Hi! My name is Noel and, when I grow up, I want to be a pediatric neurosurgeon. My first known seizure was July 27, 2012. This seizure scared me a lot, because I did not know what it was. I had several seizures where I lost consciousness. They were terrible!! I was very scared, but Mom and Dad helped me to not be afraid. When [...]


At the age of 15, I was diagnosed with epilepsy while on a mission trip in Ecuador. I had a grand-mal seizure in the hotel room, and after that my life was changed forever. At the time, I had zero clue what epilepsy was, and just assumed I might be dealing with a seizure or two every so often. I was very wrong. When I [...]


My name is Angie Bryant and I was diagnosed with epilepsy when I was 19 years old. My seizures were simple and started off as staring spells but graduated to harsh, violent seizures. After treatment life resumed to a new normalcy for the next ten years that resulted in work, friends, and single life. Epilepsy was not focus but always there at the back of [...]

Chris K.

When I was young I always imagined being an astronaut, or a naval pilot, or a professional soccer player. I had big dreams and planned on pursuing them all. Life was going great and all of my dreams seemed promising. I was offered soccer scholarships for college, I had straight A's, I lettered in three different varsity sports my freshman and sophomore year of high [...]


What is it like to be a parent of a child with epilepsy? We became parents nearly 8 years ago to our beautiful daughter Kaitlyn. Every new parent cliché came true that day. Over the next nine months we began to see that Kaitlyn was not acting like children her age. She was not reaching her developmental milestones and exhibited signs that appeared to seizure-like-activity. [...]


On February 1, 2014 we experienced the miracle of life when our baby boy, Tanner Ashton entered this world. He was healthy, big and beautiful! We fell in love instantly! Around 3 months of age, we started noticing strange jerks, and within a couple of weeks they started happening more frequently and for longer periods of time, looking like seizures, which we now know were. [...]

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