The Epilepsy Foundation of Georgia recently formed its’ first Epilepsy Youth Council. Teens and young adults with epilepsy face some unique challenges and the Youth Council will serve as the voice for this generation. The following individuals have accepted this role, and will work to improve the quality of life for youth with seizure disorders through education and social activities.
Meet the Epilepsy Youth Council
My name is Alexis and I joined the Council and I joined because my dad has epilepsy. As a part of the Youth Council I hope to raise awareness, help educate people about epilepsy and make a difference. Causes like breast cancer are well known and get lots of attention. My goal is that one day epilepsy awareness will be just as well known; one more person educated is one step forward.
My name is Ashten and I have had epilepsy since I was 14 years-old. I hope that people realize that they are not alone in this journey, and that it is far more common than people realize. I hope to forward the public awareness of epilepsy and be able to be a listening ear to those who need it.
I’m really excited to be a part of the Youth Council. When I was diagnosed, my family knew very little about epilepsy or the foundation. The foundation helped to educate us about epilepsy and I also learned from other kids with epilepsy through summer camp. By being involved in the Youth Council I can share my story and connect with other children in a deeper and more familiar way than an adult can.
I have epilepsy and so does my sister. My parents urged me to get involved in the foundation, and since then I have been very involved in advocacy for people with epilepsy. I even got to go to Washington, DC to the Kids Speak Out conference as the representative from Georgia. My hope is that through the Youth Council we can reach out to schools and youth centers to educate other kids about epilepsy. The more kids know about this condition the less misunderstanding there will be.
My name is Courtney and I was diagnosed with epilepsy when I was twelve. I am very excited about the Youth Council and I want to be a voice of hope to those who are connected to this disorder. I know that epilepsy and its treatments can be very difficult, isolating, and discouraging. I believe that people who are living with epilepsy have gone through hard circumstances which make them strong, courageous, and resilient! I want to empower individuals and families, listen to their stories, inform uneducated populations, help support the dreams of children living with epilepsy, and create a culture of ‘Surviving and Thriving’! The sky is the limit!
Since I have epilepsy, I feel that I connect really well with people to educate them about seizures. I hope to give people a new perspective about the disorder, as there is a lot of stigma attached to it. Being on the Youth Council will be a great way to make a positive impact on the community.
My name is Emma and I was diagnosed with epilepsy at age 15. On this council, I hope to raise awareness about this condition, as many have very minimal knowledge of it. I’ve decided to go to medical school to become a Pediatric Neurologist, and this will be a great start as a mentor to others. I want to plan and participate in events to raise money for epilepsy research in the hopes to find a cure. Most of all, I want other children and teens with epilepsy to know that they do not stand alone.
I was diagnosed with epilepsy when I was seven years old. It is one of my goals to become a role model for kids who have just been diagnosed with epilepsy, so that they know they can be successful and enjoy life.
I hope that being a part of this council will help me develop more self-confidence, as it is tough to deal with epilepsy. By working with others with the disorder, I hope to learn more so I can help others to deal with the challenges it presents.
I had my first seizure at 18 months however; I was not diagnosed till I was 8-9. My epilepsy has not been as bad as others which I am a very thankful for. In the EFGA youth council I would like more and more people to be aware of epilepsy and the proper first aid for seizures. I would like more adults to know how to aid for seizures, like they do if someone were to need CPR. These are my goals for the EFGA youth Council.
Samantha is a sophomore at The Weber School in Atlanta Georgia. She is very active in community service projects; she has a passion for helping people. She also has a love for tennis and track. Samantha lost her brother when she was eight to epilepsy. Since then she has wanted to make a difference and bring awareness to epilepsy.
I was recently diagnosed with epilepsy and I am not letting it slow me down. I’m very outgoing and ready to make a difference in the lives of others. As a part of the Youth Council I hope to create a greater understanding of epilepsy and others to learn that this disorder is a part of who we are and is nothing to be ashamed of.
My name is Tony and I have Juvenile Epilepsy. I began experiencing my battle with Epilepsy at the age of 12. Earlier this year, it was determined that I also have ADHD. I found this news to be devastating at first; however, I found some peace after being introduced to the Epilepsy Support Group. As a member of the Youth Council, I would like to bring a full awareness of epilepsy and it’s affects on children to youth educators. I would also like to help organize fun activities.
I am involved with my Youth group at church and I think this would be a great way to reach out to other kids and create greater understanding of epilepsy. I look forward to working with other teens with epilepsy, sharing our experiences and also reaching out to help others.